iStock 178149727Advice and support

The NTF hopes that the various information within this website will be helpful to you, your family and friends to make informed choices about how you live your daily lives.

We are trying to provide information that will help ease some of the concerns you may have about for example planning for the future, holidays abroad etc.

If you would like to speak with someone or find more information, or join a support group closer to where you live, the following groups may be able to help. 

Downloadable information

Booklet 1 1

Essential Tremor Information Book

Support Group Contacts

The National Tremor Foundation currently has a small network of Local Support Groups across the United Kingdom. These groups are run by dedicated volunteers who give their time to offer support and information to anyone affected by a tremor condition living in their area. The list below contains the groups we currently have.

Meetings vary in frequency and content across the country and aim to give people the opportunity to learn about their conditions, both from specialists and the experiences of others. Group meetings are not only about supporting one another as patients and carers, but are also about having fun, making new friends and learning all manner of things that are not solely tremor-related. They provide the satiisfaction which comes from sharing with and helping others.

Being diagnosed with a tremor may make you feel apprehensive but there are support groups dotted around the UK who are there to offer a friendly hand help in a welcoming environment.

Group meetings can involve someone coming in to give a talk on a specific matter or meetings just to catch up with each other.  It’s a welcome relief to chat to people with similar problems, comparing notes, passing on helpful hints and tips.

It’s fun too, to laugh with others at mishaps or things that have gone awry but from which we all recover.

People with a tremor can be strong and it’s surprising what people can actually cope with when they have to!!! They have a tremor, but still human and fabulous people to meet.

If you would like further details on essential tremor support groups in your area or are interested in starting up a support group in your area please contact NTF support group co-ordinator Jackie Farrell on 07843 777288 or email jackie@tremor.org.uk

Support Group Contacts

We run a number of support groups that provide help. Many run activities from dinner parties to trips to Wales. If you are interested in starting your own in your own area please contact enquiries@tremor.org.uk.

Primary Orthostatic Tremor
Jenny Beckingham
01263 837248
jennyandjohnb@talktalk.net 

Advice for children
Kitty Reilly
kitty@tremor.org.uk

Havering and Essex
Tom Schubert
01375 373993

Hull
Nicki Kelly
01482 498432

Leeds and Sheffield
Merane Todd
lands@tremor.org.uk 

Northwest
Liverpool
Tom and Joan Reader
0151  475 3252

June Jones
01942 246050

Norfolk
Toby Howes
01508 498431

Oxford
Katherine Phillips
07851 774182
oxford@tremor.org.uk 

Scotland
Mary Ramsay
07967 428036

London and South East
Jackie Farrell   
07843 777288
jackie@tremor.org.uk 

Wiltshire
Salisbury
Sheelagh Wurr
01985 216056

Online Support Groups

We now run a number of online support groups.

National Tremor Foundation Forum
www.talkabouttremor.org.uk 

NTF Facebook Support Group
www.facebook.com/groups/624447414609460

Orthostatic Tremor Support Group
www.facebook.com/groups/299934143841327