1aAlyson chairs her first Orthostatic Tremor Support Group meeting

Alyson Farr, Orthostatic Tremor Support Group Coordinator,  shares her experience of chairing her first Orthostatic Tremor Support Group meeting.

Although I was a little daunted, it was a pleasure to chair my first Orthostatic Tremor Support Group meeting and welcome 34 members, some of whom had travelled a long way to attend the meeting.

Many were happy to meet with friends, those who were there for first time received a warm welcome and realised they were not alone in coping with this rare debilitating condition.

All members felt it was important to raise the awareness of this rare condition, which is still unknown to many. The National Tremor Foundation has generously funded two 6ft promotional banners which are available to be displayed at future events.

A new member to our group, Paul Elliott, is a Tai Chi and Reiki instructor and he very kindly agreed to give us a demonstration of this art, which he had adapted to enable those with orthostatic tremor to participate.

Members all enjoyed discussing living with tremor whilst tasting a delicious afternoon tea of sandwiches, cakes and scones with fresh cream and jam.

Our thanks to the National Tremor Foundation for providing this treat!

For more information about joining the Orthostatic Tremor Support Group contact Alyson Farr on alyson@tremor.org.uk 

Find out more about NTF Support Groups and events.