IMG 20170228 172949 075My family and tremor

Simon opens up about tremor and how it has affected his family.

Tremor runs through my family. It comes from my dad’s side of the family - my dad, sister several aunties and cousins all have tremor.

Even I have mild tremor, which I get in my hand – it feels a bit like a hangover. I've had mine for about 10 years, the same amount of time as my sister. But my tremor is more manageable. I don't take medication, but my sister says the occasional glass of wine helps!

My dad’s has been diagnosed as moderate to bad. He has had it as long as I can remember. It effects his daily life. As he gets older his ability to write, drink and eat are getting worse - when he drinks he has to use a straw.

His condition is very isolating and he is often too embarrassed to leave the house. He is often turning down social events such as going out for a family meal.

A few years ago he went to see the doctor, then went to see a neurologist, but ever since it has got worse and worse. He is taking medication, Primadone, but is frustrated as the treatment doesn’t seem to be making much of a difference.

Soon my dad is going back to see the neurologist and have botox injections which hopefully will be able to help him, but my dad is not so optimistic.

I am resigned to the fact my tremor will get worse with time and hope that future treatment options will give me a brighter future and an easier life.

Read more about genetics and tremor here.