Poet MIchelle, who has Orthostatic Tremor, shares her poem about living with tremors.

MIchelleMIchelle lives with OT

My Achy Shaky Limbs

Orthostatic Tremor

I used to dance, can dance more,

I used to paint, I used to draw,

I used to type, at high, high speeds,

Now I have “Disabled Needs”.

Can’t cross the road, or wait in queues,

Activities now are oh so few.

It’s hard describing what’s wrong with me,

this condition is so hard to see.

I can walk, and look okay,

But I tremor more on every day.

I don’t look forward, don’t look back,

It’s what it is, and that’s the fact.

I wait so much for treatments new,

For me, myself, and all of you.

We need a voice, we all need aid,

We all need help to be paid.

The PIP has now been stopped...

Quality of life has sharply dropped..

For all of us, I hope they hear,

Our lives are filled with “Shaking Fear”. 

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