Through the lens: A daughter’s photographic tribute to life with Dystonic Tremor
Phoebe Nicholls, a third-year photography student at the University of Derby, shares her story about her photography degree show, which focuses on her Dad and life with Dystonic Tremor.
On Friday the 6th of June, I had the chance to showcase my final degree work at the ‘We Made It’ exhibition at Britannia Mill, University of Derby. It was a celebration of creative work from students across lots of different courses. For my degree show project, I explored a topic that was very important to me and my family.
Phoebe showcased her final degree work
My work focused on a collaborative project with my Dad who lives with Dystonic Tremor. Over the years, I’ve seen how much he’s had to deal with not just the physical struggles like the involuntary shaking in his head and hands but also the way people react with their lack of understanding. We’ve always had a really close Dad-and-Daughter bond and hearing his experiences made me want to do something to raise awareness and help others see what life is really like with a tremor.
Phoebe created a photographic installation to tell her Dad's story
So I created a photographic installation to tell his story. I used slow shutter speeds in portraits to capture the natural movement of his tremor. The photos show everyday struggles like shaving, drinking from a cup (sometimes needing a straw), using keys, and even trying to take photos himself, which is something he loves doing. I also took close-up still life shots of the objects he uses to show how intimidating they can be when you live with a tremor.
A a double exposure image of her Dad
One of the most emotional pieces for me was a double exposure image of my Dad holding his hands to his head which is something he does to try and stop the tremor for just a moment. It never lasts long, but it’s a small act of control. That image became the centrepiece of the display.
Her exhibition was supported by the NTF
Accompanying this, my Dad and I wrote and recorded a poem together. Using our voices, It talks about his experiences, struggles, people's lack of understanding, the hobbies he loves and the strength he finds in family. I added my voice too, sharing how it feels from my side as his daughter. It was emotional but also uplifting and showed the importance of family. In the background, you can hear him gently playing the guitar. This is a passion he’s had for years before the tremor progressed.
This project was my way of helping my Dad and other people struggling with tremor to raise awareness of the condition while showing they're not alone. It was important to me to show that a tremor doesn't define who someone is too. My Dad is kind, funny, creative, and strong. That’s what I wanted people to see.
I'm so proud of him for being open and brave in sharing this journey with me. I’m really grateful for the support of the National Tremor Foundation as it means so much to have your support in this and to help encourage the conversation.
If this work raises awareness while helping even one person feel seen, understood, or less alone, then it’s all been worth it.
Are you a you an artist or do you want to share your personal story? Then get in touch.
