Q&A for Supporters of the NTF to Make Contact with Their Local MP
What’s happening? On Monday 13th July 2020 from 2.00pm – 3.00pm Insightec, in partnership with the National Tremor Foundation, will be holding a virtual private Parliamentary Roundtable event for Members of Parliament. The event is being kindly hosted by the Rt. Hon. Sir Mike Penning MP, a supporter of improving the lives of people with Essential Tremor (ET).
Where will the event be happening? The event will be happening virtually and is a private roundtable event with MPs and Peers to find out more about Essential Tremor and to ask them to become involved in the campaign ahead of a key meeting the NHS will be holding at the end of July.
Why are we doing this? To give more MPs the opportunity to find out about how people in their constituencies could benefit from MR-Guided Focused Ultrasound for Essential Tremor (MRgFUS) being available on the NHS. The aim of the event is for MPs to find out how they can join the campaign. NHS England is currently looking at the next steps of making MRgFUS available on the NHS and we want a large number of MPs to get involved and support what we are asking for.
How can you get involved and support the campaign? There are several ways that you can support the campaign for patients to gain access to MRgFUS on the NHS.
1) Please contact your local MP to tell them why it is so important that MRgFUS should be a top priority to be available on the NHS. In particular we would encourage you to contact your MP and suggest they intend the virtual Roundtable event for Parliamentarians.
2) Please contact your local MP asking them to attend the virtual roundtable event. We also have a template email/letter for you to adapt and send to your local MP – please find this below.
3) Please keep in touch with us as the campaign continues to enable patient access to MRgFUS for Essential Tremor.
What if my MP agrees to attend the Parliamentary Roundtable event? It is helpful for the campaign if we know which MPs have been approached and if they are able to attend the event. Please do keep us advised as to the outcome of approaches using the contact details below.
How do people find out who their MP is? By using the following link people can find out who their local MP is: https://www.parliament.uk/mps-lords-and-offices/mps/.
What if my MP informs me they cannot attend the virtual Roundtable event? You could also ask them to please join the campaign and add their support to a joint letter we are co-ordinating to Simon Stevens, the Chief Executive of NHS England, so that patients can access this new technology.